Darren's profileThe Smiths of GAPhotosBlogListsMore Tools Help

Blog


    September 27

    Summer 2009

    Normally life yields significant material for me to write about. Regrettable I’m finding ALS has slowed our life down enough that not as much has been happening. Anyway here is this summer’s reportable Smiths of Georgia stuff.

    The two big events were the passing of Linda’s father and Lexy getting her license. Of course Linda father’s death was sad.  It had been the last few years that the two of them reconnected after many years of estrangement. It was good they had this time together. 

    Lexy got her license and quickly adopted my car as her own.  Her logic was because I no longer drive the extra car was hers.  Female logic starts really young!  Well ten days later she totals the car, guess who it belongs too now.  By the grace of God, seat belts and air bags no one was hurt. 

    Dani has moved up to high school.  Within two weeks a seventeen year old boy wanted to take her out.  She’s fourteen.   NO!  was the answer.  This stuff makes me crazy. 

    I’ve added a couple assistive devices that keep me somewhat independent.  The Toys that come with this disease gain sophistication as my symptoms progress.  I’ll do a separate entry on the toys for PALS (person with ALS).

    October 08

    Sorry for the time away.

    I’ve recently received a furrowed brow for not maintaining my postings here. I have had moments of inspiration to write something but curiously they were fleeting. I would like to think I’m disciplined but recently I’ve found myself a bit adrift. An uncommon sensation for me. I’ve been thinking I should stop ignoring my drifting and give thought to some remedies. One remedy is to write this post.
     
    To get everyone up to date: We spent the summer working around our kids activities. They attended church camp together for a week and Lexy went to a Tennessee Christian University with her church friends for a week long education and fun program. Beyond these it seemed like every other week they had a trip to six flags or a church picnic or some other event with school or church friends. This schedule juggling lasted through mid July when we had to leave town to attend a Smith Family reunion in Gettysburg Pennsylvania. In August the girls would return to school and we needed take a trip to Nashville to pack and sort Linda’s mother’s belongings before they did. So we extended our time in the north east and took the girls to D.C. and to Linda’s home town during her teenage years in Maryland.
     
    Over this time a few things have occurred that might make a good subject of a future post.
     
    On the ALS front I changed to a different alternative treatment program in early summer and purchased a dry sauna.
     
    The Smith family reunion was in a spectacular location and it was interesting to learn how everyone’s lives are progressing.
     
    The first BOY called the house over the summer. I’m still annoyed, upset, not dealing with it well and suspect I am headed for a fight that I’m sure I will lose.
     
    As if the Smith household needed more to deal with, teenage-ness manifested it self at full throttle, fueled by all its weirdness.
     

    Unanswered Prayers IV

    The last one is from a Deacon in AZ who just finished preaching school

     

    God did answer the prayers. He just had something else in mind. God always knows best. He has the very best in mind for us at all times, even when it may not look like it.

     

    When Jesus prayed for another way in the garden, God knew best. Our prayers don't always get answered the way we think they should. That usually is because were not thinking the way God does. This is not our home and too often we think it is.

     

    This is where we fall short as the created, if we only could comprehend what it is really like on the other side. I don't think we would be asking God to keep someone on this earth when on the other side the best life possible is happening. We settle for the Cracker Jack prizes and God has the 100,000,000,000. prize waiting for us. Life just doesn't make sense if we don't have heaven as our focus. Our hope is to be with God and Ursula just received here golden ticket to go ahead of us. One day though we will be united and what a wonderful day that will be. I am ready for my ticket are you? I can't wait to live with God how about you? 

     

     

    August 23

    Unanswered prayers III

    This one is from our preacher in Hilton Head.
     
     

    The simple version is that we call it "unanswered prayer" because we didn't get the answer we asked for. God answers prayer in one of three ways: yes, no, and wait. But God does not always answer the way we want Him to.

     

    For example: the apostle Paul mentions that he had a "thorn in the flesh." He prayed three times that God would take it away, but God did not.

     

    Jesus asked that "this cup" be taken from Him but it was not.

     

    God answered their prayers but the answer was "no."

     

    Imagine if God healed everyone that was prayed for, no one would ever die. I can't explain why sometimes he extends a persons life and sometimes he does not. But that's because I tend to think in terms of absolutes. Who can say if the people we have been praying for would have died much sooner had we not prayed for them.

     

    We don't have to understand the "whys" of God choices in order to have confidence in Him. He is honest with us. He has never promised us eternal life here on earth.

     

    God understands things that we cannot comprehend and so even when we don't like it, even when we don't get it, we know that He knows best. And sometimes it is best to tell us "no."

    May 26

    Unanswered Prayers II

    Response #2  is from our preacher here in Fayetteville.
     
    Look at 1 John 5:14, it says if we ask anything “according to His will”, so His will was different than our will concerning Linda’s Mom.

    He knows better than we do. He knows what she would have had to experience in the months and weeks to come.  He knows what temptations were coming her way, and He knew what was best for her!  We don’t see the whole picture, but He does. 

    I would point out that it was not a case of an “unanswered” prayer, but of a time when God said “No” He still answered, but not with the answer we wanted.  It is great when our will matches up with God’s will, but sometimes our will is not what God knows is best for either us, or our loved one. 

    April 26

    Unanswerd Prayers

    The issue of unanswered prayers came up after Linda’s mother passed away. Lexy asked with so many prayers for her grand mother to get well why she died. With my ALS continuing to progress the question has arisen of why God has not intervened, as many prayers across the globe have asked Him to do so. After Lexy asked her question I sent an email to four Church of Christ preachers for their understanding of unanswered prayers. I thought most would be interested in their response. I will post one response each month. The first is below. It’s from the preacher at the church Linda’s mom attended.

    Response # One:

    The true answer is “God’s will is always better than ours.”  But still, we pray that “our will” be done.  Jesus tells us that God knows what we need before we even ask Him (Mt 6:8) but still the Lord knows that we “need” to ask Him (pray).  Jesus prayed in the Garden of Gethsemane that the Father “remove the cup” from Him (death on a cross) but knew that God’s perfect will might mean that He might have to die on the cross so He closed His prayer with “your will be done.” 

    You see we just don’t know God’s will so we continue to pray.  All of us will one day die and transition from “life” on earth to everlasting “life” (as Ursula did – Heb 9:27).  God blessed her with a long, happy life (Ps 90:10). 

    Did God hear the prayers of the family and friends?  Oh yes!  Did He answer our prayers?  Oh yes!  His answer was: “I know you love your mother, grandmother, friend … and so do I … but there is so very much you don’t know and I do.  It is time for my daughter to come home.”   

    I’ll post another next month.

    April 03

    Winter Break Cont.

    After our shopping adventure, we headed to a nice visit with my oldest sister and her two sons. It was a great time hanging out with them. Salem/Roanoke is a neat part of our country with its history, landscape and generally easygoing folks.  

    Its was a short visit as we needed to return home to attend Dani’s first Ti Kwon Do tournament. On Saturday morning we headed out to a high school gym about an hour north of us. Luckily there was a Starbucks along the way. Well, was I surprised. There were six sparing mats (read rings) and hordes of kids. The place was active the entire day with the several hundred kids competing for bronze to gold metals. I did some quick math in my head. If this was a conversation my wife would quip dryly if this was painful. Based on the entrance fees alone the promoting of these events is a pretty big business. This is way more serious and sophisticated then I imagined.  

    We signed in and then we waited and waited…at 3:00pm Dani’s match began. Apparently there are not many beginners (white belt) at Dani’s age who do tournaments. There was only one other girl her age close enough in ability (yellow belt) for her to compete with. Even though it was a lot of effort for one round, it was good for a first time out as she got a lay of the land for next time and hey, she was guaranteed to win a metal.  

    Her sparring partner was taller and one belt higher then her, both causes for concern. When the match started Dani’s opponent came out kicking, seemingly without thought. Dani was clearly surprised by the barrage, but smartly leaned into her opponent negating any force and contact of her blows. More importantly no points were being scored. As the kicks were going awry some landed on Dani’s ankle and after a minute Dani was limping in pain. The referee stop the match, Dani was attended to and back in the ring ready to continue quickly. I don’t know what was said to Dani but forty five seconds after the second start Dani had knocked her opponent down, scored seven points and the matched called in her favor. Her opponent walked off the mat crying and bleeding. It happened so quick we stood there a little stunned and confused.  

    Dani collected her Gold metal. As we where walking out I asked Dani what happened. She looked up at me with the eyes of a worrier and said; she made me mad.  

    The boys are in deep trouble.

    March 14

    Kids Winter School Break

    Towards the end of February our girl’s school had a week off for a winter school break. I don’t remember such a break when I was in school. I recall going straight out from New Years to Easter with a three day weekend somewhere in the middle for some dead president’s birthday. Times are changen. I’m not sure I like it.  

    While some parents where scrabbling to find coverage for their kids, Linda and I, living the life of leisure, packed up the van, kids and dogs and headed for my oldest sister in Salem, Virginia passing through(kind of) Hickory, NC. Some of you might know about Hickory, NC. They are known for furniture making and have a furniture mart. We want a new kitchen set and as we were close to passing through this haven of furniture makers we thought we would take a look. We’ll two days of walking an untold number (I lost count) of stores in this gi-normus (new word from Lexy) four story furniture mart building was about all a man can take. If we had not saved an amazing amount of money I would have had to hide the guns, if I had any.  

    The idea that we saved money while spending money is dichotomous to me. But the girls in my house are annoying comfortable with this concept. The end result was we spent 50% more then we thought we would but saved 50% of the cost if we had bought it at home. I’m still scratching my head on this one. This fuzzy math is occurring with greater frequency as my girls become more educated. This is all very confusing for me.  

    More on our tip later….

    January 26

    Mom Dayles memorial service

    It was Saturday January 20th at the Antioch Church of Christ in Antioch TN. The church there was such a fantastic source of encouragement for Mom over her years attending and working with this congregation. It was amazing the impact she had during her time there.  She clear blossomed and flourished more then anytime over the 20 years I knew her.

    There were over 100 people who attended the service. Each had a personal story about how Ursula impacted their lives. What struck me most were her ever present optimism and constant concern for others more then herself. Even as the news of her condition got worse with each passing week she always had a smile and encouraging word for all who came by. She was a terrific example for me of faith in God and Christ like behavior in the face of adversity.

    The memorial service was a true testament to her life. The preachers and song leaders’ did a fantastic job making this one of the best most said they’ve attended. 

    Ursula requested to be cremated (which was honored) and buried in her family plot in Milwaukie. After winter Linda and her sister plan on laying her remains to rest. We have one more trip to honor Mom and her wishes in May or June in Wisconsin.

    January 16

    Linda’s Mother passed away

    Ursula Dayle passed away January 14th at 5:50am. The cancer was to aggressive and wide spread for conventional or alternative treatments to overcome. Over the past few weeks we had to accept that our desires would not prevail and God was determines to take her home. Linda is having a difficult time with this loss. I suspect it will be some time before she is able to think of her mom without tearing up.

    Since Christmas we have spent as much time in Franklin, TN with mom then at home. We have one last trip this weekend (1-20-2006) to gather with friends and family to say a final good by.

    January 01

    Christmas with the Girls

    Having younger kids makes our Christmas full of energy and joy. Linda and I cherish these moments. Since the girls found out who Santa Claus really is their wish list is getting more and more..., well you know!
     
    One thing that’s been on the list even before the “Santa talk” was their wont of a dog. Not one dog, but one dog each. Well we’ve always had a bit of DoLittle in us. I can’t remember less the four animals around for some time now. But two dogs in one house of already two cats and two birds took some years for me to be talked into. This wish, as you might have already guessed, was fulfilled this Christmas.
     
    Lexy picked out a Yorkie-Poodle. Dani picked out a Pomeranian-Poodle. They are cute. And have christened the house but good.
     
    See pics attached

    December update

    I’ve gotten behind in my updates, mostly due to travel and holiday activities.
     
    We had a wonderful visit with our relatives in Denver. They have a nice little horse ranch with four well trained horses. Rick has his own small law firm so he was able to take off to be tour guide. Between the horses, family, thanksgiving and a trip to 11K feet for snow, this trip exceed our expectations. See pics.
     
    Linda’s Aunt and Uncle are in a very nice assisted living facility. These places are spectacular in there quality of living and the services they provide. Linda’s Aunt and Uncle where so surprised and pleased to see us. Seeing them again was worth the trip alone.
     
    We hope to return in 07 over the summer.
     
    We retuned home just in time to miss the big snow storms that moved over Denver.
     
    Just as we started into a full swing of Christmas planning and doing we get a call that Linda’s Mom had a fall that put her in the hospital. The scan and test determined she had a stroke and that the cancer has spread to her brain. The first step was to get her over the bumps & bruises before they started intense treatment for the cancer. Linda’s older sister (Mom lived with her) had her moved to an assisted living rehabilitation facility for proper supervision as she recovered. Things where moving along nicely. We decided we would have Christmas in Fayetteville in the morning and drive to Nashville to surprise her Mom for dinner Christmas night. Upon arrival to Nashville we called to be told her mother, ignoring or forgetting she needed help moving out of bed, got up on her own and fell earlier that day and she was in the hospital again. Luckily noting was broken, but the results where a major set back. She was disoriented for two days. By the third day she was back at the home and fairly alert. We spent time with her, exchanged gifts and just hung out with her. Linda was so positive, a real source of hope and encouragement to her Mom.
     
    The first week of January Linda’s Mom will be moved to a longer term assisted living facility that will watch over her until she recovers from the cancer or succumbs to it. Updated test will be completed in two weeks. The results will tell us to what degree we should be concerned.
     
    The trips to Nashville will be more frequent. We will head up there the weekend of the 5th.
    November 18

    General update

    The Smith family is getting along swimmingly of late. Linda is thinking about going back to work. We will see what she decides after the holidays. I’ve wondered what I would trade my Managing Director title for...We'll see if I’m manly enough to run the house and two teenage girls. From what I’ve seen so far it’s a 50/ 50 proposition.

    Smith taxi service is up and running with the kids after school activities, tennis lessons, Tae Kwon Do, friends outings, it goes on and on and on…our girls don’t stay still long.

    Linda’s Mom reports that her most recent CT scan shows most of the tumors are not growing, some are smaller and one is a little larger. She is doing well and will continue her treatments both conventional and alternative.

    We are off to Denver for Thanksgiving. Linda’s close aunt and uncle from Sun City West, AZ moved there to be close to their only son and Linda’s only cousin. We’ve not seen them in a few years and they are in their mid 80’s, so it’s time for a visit. We are looking forward to a nice family holiday and maybe some snow.

    From the Smith’s of Fayetteville, Georgia we hope for you a wonderful and safe Thanksgiving.

    August 18

    Being a Redneck

    My wife thought the attached photo was funny. Being kind of a redneck I’m still undecided if this is funny or just true. I personally would have less limo and more trailer. But hey, each to their own!

    August 08

    Kids summer vacation wind down

    Pictorial overview is below

    The sprint to the end of the summer has been a whirlwind of activity that started the end of June with a visit from a friend and her kids from Daufuskie. The first set of pictures are from an interactive Zoo in south GA and the second set is from the worlds largest aquarium. We then move to July 4th with a family visit to East Point lake located on the Georgia / Alabama line 1 ½ hours south of Atlanta. Good fun was had by all. The week after we went to Nashville to visit with Linda’s Mom and the Monday after that I went to Newport RI for a few days to help an old friend with a project in the area. Upon my return the family headed to Daufuskie Island / Hilton Head for a visit with old friends, former work associates and a birthday party. We returned to a need to shop until they drop in preparation for the kids start of school August 7th. We hope you enjoy the pictures.

    June 22

    She’s back. I’m gone.

    Dani returned from camp in one piece, happy and three new friends to the good. She said she missed us. We suspect that she had little time to think about such things. She pretty much sleep for two days on her return. Overall a great time for her.

    Two days after her return I drove to Panama City Beach with my Dad for three days. He calls these excursions walk abouts. He does them twice a year or so, normally alone. Now that we are both retired we did this one together. One of the many blessings that comes with my ALS diagnosis is spending real quality time with my parents. The last few months have been precious time with them. I’ll do a couple of blogs over the next few weeks about me and my dads trip to the “Redneck Rivera“.

    June 13

    Dani’s first summer camp

    Our youngest daughter (age 11) left for her first ever camp experience this week. She has been so excited about this new adventure. She just beamed at every thought of spending time with her friend and another few hundred kids romping through the wilderness. Linda and I thought we where ready to handle this, but here I am up at 4am worried about my little girl. So much for Mr. tough guy!

    May 25

    Life in a routine

    The Smith family and our home has settled into a routine. The girls have school and friends and Linda and I have family, homecare and improvement and staying engaged in our kids lives. As a family church is very much part of our lives. The last few weeks have been uneventful and filled with life’s normal going on’s.

    We did take a quick trip to Nashville TN to visit Linda’s Mom. She is having surgery to remove a tumor May 22nd. We thought some family support would be helpful. So we showed up over mothers day weekend. We had a nice visit and a great mothers day meal at the Opryland Hotel. Both girls school end May 26th. So we are in the throws of planning family travel, kids camps, church camps etc. We expect a busy and active summer.

    April 19

    Looking for a church home

    The Smith family has been visiting two Church of Christ congregations in Fayette County trying to determine the best fit for our family. For those not familiar with Church of Christ Church www.fcoc.com/whatwe.htm,most congregations are 50 to 100 members in size. The last two congregations we have worshiped with where under 70 folks. Well Fayette County grows them bigger. One is about 180 members and the other 350. It has been interesting navigating the get to know them process. They offer so much and there are so many people to meet. Getting a handle on the best fit for us has taken much longer then we expected. In the end they are both fine congregations. So we broke on the line of offerings for our kids. One has a large youth program the other is just getting their youth program started. It has been over five years since our girls have been in large youth group so we thought they deserved this consideration. In the next week or so we will become members of the Fayetteville Church of Christ. The one with the 350 members. www.fcoc.com

    April 08

    Spring break

     

    The girls have been on spring break this week. We decided to spend time getting more boxes finished off in the house and doing some local fun stuff with the girls. The girls helped a bunch on the house and we spent time at a local amusement park called Dixie Land ( we are in the deep south). They also did their newly introduced sport of rock climbing. They are really taking to it and both are able to climb a 30ft wall.
    Overall a leisurely week with the kids working, having fun, going to movies and just hanging out.