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July 30 Emory Clinic VisitMy recent visit with the gang at Emory’s ALS clinic was relativity uneventful. During my visit six months ago they asked me to bring my family “next time” so I did. Why they asked this I don’t know and during the course of this visit it was not revealed or particularly evident why. One benefit would be if Guinness World Records showed up as we squeezed my family, a couple doctors, a nurse and some observer from the ALS association’s board between the equipment in our small exam room.
Actually all we needed was a clown with a horn to complete the theme.
This visit was abbreviated for some reason. Of the seven or so folks who normally cycle through to test or speak to me only four were scheduled. I am going to assume this is a good sign. That less poking around means Emory’s not as concerned.
The three significant areas reviewed where my weight, muscle / function loss and lung function. I’ve lost more weight, to my chagrin and slight annoyance of my nutritionist. I am now at my optimum cruising weight for my height. A point I’ve not seen for twenty years. Her directive; lose no more and consume 2500 calories a day. The continued loss of muscle in my arms, shoulders and reduced ability to speak was noted by all. They have previously deemed this as expected to slowly continue until paralysis. How long this will take they just don’t know. The good news is my lung function is 84% (above 80% is normal) the exact same as six moths ago.
On balance a good report and good visit.
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