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    July 21

    ALS - A frustrating disease

    My list of why!

    • Clueless geniuses -The smartest doctors are rendered clueless by it.
    • It’s water torture - A slow steady loss of normal, and until now, taken for granted limb functions.
    • Mind Body disconnect - My mind has not caught up with what my body cant do.
    • Buttons - Fine motor skills are shot. Anything smaller then a quarter is almost impossible to deal with.
    • Manliness drifting away - My 11 year older daughter can out bench press me.
    • Puzzled Flight Attended - I have to ask them to put my bag in the overhead bin.
      Puzzlement transcending to astonishment when I ask them to unscrew the bottled water top for me.
    • Getting the your being difficult look.
    • No time to explain - most folks wont stand still long enough to hear why you need assistance.
    • Humbling. Learning to ask for help! It's not a guy thing.