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April 26 ALS update 2008I’m not sure were to start. Our search for a cure of ALS has been accelerated recently resulting in a collecting of additional clueless geniuses (doctors for the newbie’s). On the home front life has been relatively uneventful with one exception: Teenage-ness! Wow…what a ride. What was God thinking when he thought this up? Don’t get me wrong, our girls are fantastic in so many ways, but the moments when the dark side of teenage-ness kicks in are jarring, baffling…well frankly there mostly annoying. A friend summed it up nicely when he said “it’s amazing how grown up they can be one minute and how infantile the next”. No truer words.
After three years battle to detoxify, immune system building and treating chronic lyme's disease, we hit a wall. For the last year there has been a steady loss of function and we seemed to have run out of natural remedies that will slow the losses and kill the cause of my lyme's disease. We also learned the company used to determine I have lyme's was discredited causing new test with a new company who’s results came back as, you wont believe this, they actually put this in writing: “INDETERMINATE”.
Before I comment on this, I’d like to diverge for a moment. This was revealed during a conference with the younger (40’s) of my two alternative doctors in Charleston. The older (70’s), recently semiretired founder of the practice has slowly yielded to his younger partner. This young gun is less a natural remedies purest and embraces the idea that an integration of natural and manufactured remedies can be helpful. Since Dr C’s introduction a couple years back it’s been amusing, occasionally enlightening, watching these two men spar over integrative remedies.
Now back to Dr. C and when he said “the test results are indeterminate for lymes”. Reflexly we ask: “what does that mean”? The response was as affirming a moment as I think I could have that the “clueless geniuses” description is on the mark. Dr. C: ‘I’m not sure (long pause) I think their saying there’s enough there to indicate something but not enough there to say that it is something’. As if the use of the stupendously ambiguous word indeterminate was not enough, Dr. C lays an Abbott & Costello "Who's on first" like riff on us.
In my next post I’ll cover Dr. C’s redemption and how we add a couple of doctors. |
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